Learning Disability Annual Health Checks and coding issue
Learning Disabilities Codes
Incorrect changes were made to the Learning Disabilities Codes cluster that led to the potential inclusion of patients that do not have a learning disability. This will have inflated the number of patients counted. The GPSES team completed an extensive review of the codes in the LD_COD refset and the codes detailed in the table at the end of this update have all been removed.
This was done in two releases. The first release in November (27th) corrected conditions initially identified. The GPSES team completed a full review and identified further conditions which were rectified in a December release (29th).
Latest Update
The latest position for the major GPSS (TPP and EMIS) is that their systems have now been upgraded with the latest version, so LD registers should revert to normal levels in the January data extract and resolve the denominator and payment issues.
This change will mean that payment for achievement of indicators using the number of patients on LD registers will be based on the corrected lower number which will be applied for all relevant activity carried out from the start of the 2023/24 financial year.
If there are any practices who are still experiencing issues with their LD register reports from the systems, they should engage with their GP Clinical System Supplier.
There is also an opportunity to present evidence to a Practice’s ICB and request approval to manually correct achievement figures at year-end via the declaration process should further corrections be required.
NHS England encourage GPs to maintain their offer of learning disability annual health checks through March, continuing to enable people with a learning disability to have the vital access to primary care that they need to support their health, supported by a health action plan.
Codes that have been removed
81854007 | Alexander disease | November Release |
192990004 | Benign myoclonic epilepsy in infancy | November Release |
205506004 | Craniodiaphyseal dysplasia | November Release |
722005000 | IRIDA syndrome | November Release |
27718001 | Maple syrup urine disease | November Release |
449824004 | Marden Walker syndrome (disorder) | November Release |
735676003 | Narcolepsy type 1 | November Release |
92824003 | Neurofibromatosis type 1 | November Release |
28835009 | Retinitis pigmentosa | November Release |
29145002 | Schwartz-Jampel syndrome | November Release |
29352008 | Thanatophoric dysplasia | November Release |
232057003 | Usher syndrome type 1 | November Release |
88518009 | Wilson disease | November Release |
65389002 | X-linked adrenoleukodystrophy | November Release |
44600005 | Xeroderma pigmentosum | November Release |
7573000 | Classical phenylketonuria (disorder) | December Release |
205788004 | Fetal alcohol syndrome (disorder) | December Release |
10406007 | Lesch-Nyhan syndrome (disorder) | December Release |
63119004 | Weaver syndrome (disorder) | December Release |
2593002 | Dubowitz’s syndrome (disorder) | December Release |
77527000 | 9p partial trisomy syndrome (disorder) | December Release |
15285008 | Adenylosuccinate lyase deficiency (disorder) | December Release |
59399004 | Cutis laxa, x-linked (disorder) | December Release |
613003 | Fragile X syndrome (disorder) | December Release |
54898003 | Multiple sulfatase deficiency (disorder) | December Release |
9740002 | Macroencephaly (disorder) | December Release |
15182000 | Coffin-Lowry syndrome (disorder) | December Release |
449817000 | Peters plus syndrome (disorder) | December Release |